I am new here today. I think my son would be very good for this. He is 19, has EDS III (Diagnosed by Dr. Francomano), and was diagnosed at Duke with POTS by a cardiologist. He is not on any of the drugs you mentioned. He is very sick, housebound for about 2 years now. I don’t know about MCAD yet…just heard of it.
I will send an e-mail.