Hi Dr. Diana, I’ll be emailing you about this too. I think I might qualify. I was diagnosed with dysautonomia but was never told the exact form of it so I’ll be checking with my doc about that. You can’t get rid of me now. 😉
Most of us with hyperadrenergic POTS KNOW we are hyperadrenergic! Our norepi levels go through the roof after standing for 10 minutes. But it is not essential that you know what type you are. I just want the very SICK ones to be tested. 🙂 Assuming the first 10 show what I think they’ll show, then we’ll get to expand the study. Cool? 🙂 Diana
I think my mom would be a great fit for this one but she’s been on topomax for headaches. Would it work if she went off it for the trial?