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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Dr. Fry and "Protomyxzoa rheumatica" — a comment

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Dr. Fry and "Protomyxzoa rheumatica" — a comment › Reply To: Dr. Fry and "Protomyxzoa rheumatica" — a comment

January 3, 2013 at 10:35 pm #3290
Dr. Diana
Keymaster

This is my response to a post that was deleted:AdlersMommy, please see my above response. The diet is not my greatest source of concern (nor Dr. Fry’s greatest source of income). A few concerns: 1) There is no evidence of the existence of this protozoa on Google Scholar or PubMed 2) Dr. Fry owns the ONLY lab that can “test” for this protozoa 3) He has no journal publications nor clinical trials (yet is charging the patients) 4)I read everything I can find about his work. I have found nothing that reassures me he is on the up and up. No other doctors have validated his findings in five years. There is no photo of this protozoa. I would think a huge discovery like this would warrant investigation by a research center of some sort, especially if it is the cause of the NUMEROUS conditions he claims. 5)You say that he is only recommending a change in diet (and no magnesium), but I read about his later recommendations for expensive IV treatments (again, not as part of clinical trials) 6)My own research results are in conflict with his findings. So, this is a protozoa that only Dr. Fry has found, only Dr. Fry can test for, and only Dr. Fry can treat? Bells are ringing all over the place. I think it is important NOT to confuse a doctor who seems kind and patient, with one who is ethical. I don’t understand what you mean by ‘my family members were triggered by viruses’ — “HAH”?! No, I haven’t discussed all of my thoughts about our condition(EDS/dysautonomia). I have not yet published it. I am currently patenting some of it, as initial trials (which were self-funded — patients were never charged) were so encouraging. I do not seek “cures” for genetic defects, but I have found some “work-arounds” for aspects of our condition that have been over-looked. Figuring these things out has not eliminated our need for medication, but I am medicating the source of our problems, not the symptoms. Being in this EDS/POTS world for so many years, I have learned that if we just treat the symptoms, our path can become quite dreadful. I am excited to share what I’ve learned soon. Everyone, of course, has the ability to consider all of their options, and to review the science for themselves. And if someone doesn’t want to know what I think, then they shouldn’t ask. Plain and simple. I get numerous requests from all kinds of doctors, nurses and non-medical folks looking for a platform to try to sell their wares. I do my best to try to discern what is legitimate, and what may not be. This is one that made the hair stand up on the back of my neck. Yikes…

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