Do you have any information about diabetes Insipidus? Or heard of it in conjunction with this whole EDS picture?
Yes I looked at Diabetes Insipidous quite a few years ago. I’m sure it was involved in my demise. My history was that I had a bad head and neck injury in 2002, which triggered a progressive decline in my health. At the time, I was looking at what could be causing my tissue to collapse when pressed (and not spring back up) also I was always needing to drink (not to glug it down but to constantly sip). I was urinating often, as a consequence. I couldn’t understand why, if I drank so much, I was exhibiting the symptoms of Dehydration.
I mentioned it to countless doctors but none looked into it.
Here’s a bit of info:-
What causes Diabetes Insipidus?
It is caused by problems with a hormone called Anti Diuretic Hormone (ADH). This hormone plays a key role in regulating the amount of liquid in the body. ADH is made by a part of the brain called the hypothalamus and is stored just below it, in the pituitary gland. Now, in people with ‘raised intra-cranial pressure’, who maybe have a partially flattened (or totally flattened) pituitary gland (called an ‘Empty Sella’) this can become problematic.
In normal people, when the amount of water in the body becomes too low, ADH is released from the pituitary gland. This helps to retain water in the body by stopping the kidneys producing urine. However, if you have a malfunctioning pituitary gland (or hypothalamus), this doesn’t seem to happen as it should, to quote:
“Cranial diabetes insipidus occurs when there is not enough Anti Diuretic Hormone (ADH) in the body to regulate the production of urine. This is the most common type of diabetes insipidus and can be caused by damage to the hypothalamus or pituitary gland, for example after an infection, operation, brain tumour or head injury.”
I rest my case.