• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Mast Cell Disorder

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Mast Cell Disorder › Reply To: Mast Cell Disorder

October 6, 2013 at 1:21 pm #4487
Barbara
Participant

Do you have any information about diabetes Insipidus? Or heard of it in conjunction with this whole EDS picture?
Nancy

Hi Nancy,
Yes I looked at Diabetes Insipidous quite a few years ago. I’m sure it was involved in my demise. My history was that I had a bad head and neck injury in 2002, which triggered a progressive decline in my health. At the time, I was looking at what could be causing my tissue to collapse when pressed (and not spring back up) also I was always needing to drink (not to glug it down but to constantly sip). I was urinating often, as a consequence. I couldn’t understand why, if I drank so much, I was exhibiting the symptoms of Dehydration.

I mentioned it to countless doctors but none looked into it.

Here’s a bit of info:-
What causes Diabetes Insipidus?
It is caused by problems with a hormone called Anti Diuretic Hormone (ADH). This hormone plays a key role in regulating the amount of liquid in the body. ADH is made by a part of the brain called the hypothalamus and is stored just below it, in the pituitary gland. Now, in people with ‘raised intra-cranial pressure’, who maybe have a partially flattened (or totally flattened) pituitary gland (called an ‘Empty Sella’) this can become problematic.

In normal people, when the amount of water in the body becomes too low, ADH is released from the pituitary gland. This helps to retain water in the body by stopping the kidneys producing urine. However, if you have a malfunctioning pituitary gland (or hypothalamus), this doesn’t seem to happen as it should, to quote:

“Cranial diabetes insipidus occurs when there is not enough Anti Diuretic Hormone (ADH) in the body to regulate the production of urine. This is the most common type of diabetes insipidus and can be caused by damage to the hypothalamus or pituitary gland, for example after an infection, operation, brain tumour or head injury.”

I rest my case.
Regards
Barbara
(UK)

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020