Thank you hugs gratefully accepted!
This Diabetes Insipidous (DI) topic reminds me that I’ve heard one or two (with P.O.T.S., EDS and similar conditions) on the various forums, say that they feel better when they have been put on a drip for fluids. I wonder if they actually have DI and the reason why they feel better, is that their available fluid level has been ‘normalised’.
I think it was 2003/04 when I was suffering the DI type condition, or should I say it was at it’s worst then, the arrhythmias were worse then and so were the leg pains and it possibly was the start of the blood clotting issues (I was put on a maintenance dose of 75mg dispersible Aspirin daily, eventually). One thing that helped me was having a daily bacon sandwich, lol – probably the salt content helped! Do you improve when you have salty foods ?
For those whose DI type problems are brought about by cranio-cervical instability, causing problems with cerebro-spinal fluid (CSF) flow, which results in raised intra-cranial pressure, then the best treatment whilst waiting to be assessed by an endocrinologist, is a cervical collar – to help improve the CSF flow. However, you have a pituitary cyst that is a possible cause which, although it may be stable, could still be interfering with pituitary function (or communication between hypothalamus and pituitary). I know of a girl here in the UK who has the same problem.
How bad is your EDS, are you very hypermobile ?
Regards
Barbara
(UK)