Thank you! Yes, I have been diagnosed with EDS type 3. I have had MRIs in the past but they were lying flat and no one has ever looked for Chiari. I was referred to the Chiari Institute by my geneticist but I’ve been so sick that I haven’t been able to follow through that. Also, I have never been into the idea of surgery, so I’m not even sure if I’m going to go to the Chiari Institute. Yes!! I definitely want to try Diamox!! I just want to be sure that I do it correctly. The dysautonomia and/or Chiari symptoms are kind-of secondary to the symptoms of burning to death and reacting “allergically” to everything but it would certainly be nice to get improvements wherever I can!
What are the differences between Chiari symptoms and dysautonomia symptoms? Since they mimmic each-other are there any differences or are they pretty much the same?