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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Mast Cell Disorder

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Mast Cell Disorder › Reply To: Mast Cell Disorder

October 6, 2013 at 7:57 pm #4492
Inafog
Participant

Thanks again. My situation is so complicated, because I have a CSF leak at the area where my neck is hypermobile. I had it patched for the 10th time about a month ago, and now have rebound high ICP…I have been trying to add salt as much as possible and using Nuun, but the high ICP causes painful headaches and eye pain. I would take Diamox to relieve that, but I am afraid because that accelerates my fluid loss… One time I lost almost 5 pounds from just 250 mg.

I just don’t no how to regulate them both, it is like they are fighting each other. I bet a fluid drip would feel good.

many many hugs to you for taking your time to explain. I am so sorry you ended up with so many complications from this. It makes me want to get this whole thing resolved quickly!

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