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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: confused about dysautonomia

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › confused about dysautonomia › Reply To: confused about dysautonomia

October 14, 2013 at 9:23 pm #4510
Soprano1
Participant

I forgot to mention retching. I’m constantly retching and shaking violently, almost like convulsing. It’s really scary, annoying and inconvenient. I feel like people think I’m acting or looking for attention when it happens because it’s often a very dramatic spectacle but I just can’t control it :(. Also my forearms arms have this weird bright purply pattern on them that seems to be worsening. Is that a vascular thing? Dysautonomia thing? MCAS-esque-associated thing? Or nothing to be worried about?

Also, anyone know what’s up with that other rash thing? Anything to be worried about do you suppose? The doctor didn’t know what is was and didn’t act very concerned (but after the experiences I’ve had with doctors throughout this whole nightmare of a journey so far, that doesn’t provide me with any comfort).

Thanks!

~Katie

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