Dear Dr. Diana,
I have the Driscoll theory. I cannot find the free brochure on POTs.com. I did find the website, though. Very exciting. I am taking the antihistamines and they are helping. I bet you are quite correct that it is not the BOTTOM LINE. I do know that they help. I had a concussion and it brought out all kinds of symptoms. Firstly clear fluid ran from my nose. Now, when I drink quite a bit of water my nose runs. Go figure that out…My lyme would be late stage but my blood work is inconclusive. I have, as you know, POTS, EDS, and MACD…genetic variety. Heck, I even had a surgery done to enlarge my urethra at the age of 2 because I was having so many cystitis infections. Now I know that my C1 C2 are out of place. The night of the concussion, when I lay down seven hours later, I got the most FEROCIOUS HEADACHE! This sounds like too much pressure to me. I cannot get alkaline! My BUN levels have always been slightly elevated or high. My lyme doctor has given me the Diamox. I took it…it tried to work. I would love to see any information from POTS.com. I went to the website and it just talked about who you will treat. People like me! I am not in great shape to travel…I am in CA with an integrative lyme specialist. We have not started treating the lyme. I am so sensitive.
I am a “Valley Girl” from South Texas. It would be great to be treated closer to home. Ranching family. My
grandfather was Lloyd Bentsen and my mother is Betty Bentsen Winn.
Thank you,
Susan