NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › I feel so lost….EDS, POTS, MCAD, and lyme › Reply To: I feel so lost….EDS, POTS, MCAD, and lyme
Dear Dr. Diana,
I have the Driscoll theory. I cannot find the free brochure on POTs.com. I did find the website, though. Very exciting. I am taking the antihistamines and they are helping. I bet you are quite correct that it is not the BOTTOM LINE. I do know that they help. I had a concussion and it brought out all kinds of symptoms. Firstly clear fluid ran from my nose. Now, when I drink quite a bit of water my nose runs. Go figure that out…My lyme would be late stage but my blood work is inconclusive. I have, as you know, POTS, EDS, and MACD…genetic variety. Heck, I even had a surgery done to enlarge my urethra at the age of 2 because I was having so many cystitis infections. Now I know that my C1 C2 are out of place. The night of the concussion, when I lay down seven hours later, I got the most FEROCIOUS HEADACHE! This sounds like too much pressure to me. I cannot get alkaline! My BUN levels have always been slightly elevated or high. My lyme doctor has given me the Diamox. I took it…it tried to work. I would love to see any information from POTS.com. I went to the website and it just talked about who you will treat. People like me! I am not in great shape to travel…I am in CA with an integrative lyme specialist. We have not started treating the lyme. I am so sensitive.
I am a “Valley Girl” from South Texas. It would be great to be treated closer to home. Ranching family. My
grandfather was Lloyd Bentsen and my mother is Betty Bentsen Winn.