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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Self-Diagnosis

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Self-Diagnosis › Reply To: Self-Diagnosis

June 2, 2012 at 2:39 pm #2316
Maffin
Participant

@SweetFeather

Digestion/food/diet has always been strange. For instance, I could drink a litre of milk one day and be fine, but on another day, even a couple sips and I may as well be lactose intolerant. Completely unpredictable so far. The same goes for drugs, where pseudoephedrine seems to do nothing most of the time, but rarely it can increase my heart rate to the point where I have symptoms of a heart attack and nearly pass out. Other drugs work 99% of the time, but sometimes do absolutely nothing no matter the dose. I generally avoid the foods/drugs known to sometimes cause unpleasant experiences for me.

Before getting out of bed, BP is borderline at 115/80. But it’s actually higher than my average, 105/65. Pulse is ~10 lower than mid day. I’ll play around with it more once I find something to raise the angle of the bed to compare results.

@Only You

I didn’t take my health seriously when I was diagnosed with EDS ~10 yrs ago. Like a normal teenager, I thought nothing would happen until I was old (30!). I’m paying for that now, and have discovered that 23 is old, not 30 =D

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