Hi George, I’m not entirely familiar with the full Haacke protocol, but my wife has had similar protocols for flow mri/mrv/mra done at Stanford and the Hubbard Foundation in San Diego. She has CCSVI, pusilar tinnitus, pain at the base of the skull, and extreme vertigo just like you. Her heart rate also drops very low as well.
My experience has been that the docs we’ve seen are not really looking for external communicating hydrocephalus. My understanding is that ventricle enlargement would not necessarily occur in external communicating hydro since there is not an obstruction between the ventricles. My sense is that most docs looking at hydro stop once they see no evidence of ventricle enlargement. This is unfortunate since it could be adding to the number of undiagnosed patients with this health problem. In any case, I don’t think the Haacke protocol (or any of the ccsvi protocols) is focused on hydro, but more on CCSVI instead right? I suppose it’s going to pick up on it given how extensive the brain imaging is in it. However, you may be better off trying to find someone that could focus on that particular issue.
I know that in my wife’s case there appears to be extra fluid on top of the brain (to my eyes), however, no one has read the imaging in that way. I can tell you that a positive response to treatment with Diamox is considered by some to be an indication that hydrocephalus is present all by itself. Are you taking Diamox? She’s responded well to it, you might consider talking to you doc about it if you haven’t already.
I have read in places that normal pressure hydro can be episodic such that it may not show itself until a patient is lying down during bedtime at night. However, I’ve not heard of this in other forms of hydrocephalus. Good luck!