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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Endocrine issues and EDS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Endocrine issues and EDS › Reply To: Endocrine issues and EDS

July 1, 2012 at 8:03 pm #2510
Barbara
Participant

Hi again,
With regard to where do you start, what do you do to get treatment, etc., firstly can I ask, have you had an Brain MRI ? If you have, was there any mention of an empty sella (or partially empty sella) because the ‘sella’ is a bony chamber where the pituitary gland sits and an empty sella suggests a flattened pituitary and a flattened pituitary gland can cause strange thyroid abnormalities. Secondly, if you have had an MRI, do you have a copy ? If not, I suggest you get a copy and compare it with the illustrations in Dr Diana Driscolls Theory.

If you haven’t had an MRI yet, I suggest that’s where you start. I think you have adequate reason for requesting one, as you have migraines, headaches and possible pituitary malfunction, you also have many of the neurological symptoms of EDS, so that’s a further reason to get one.

When you get hold of it, check for ‘External Communicating Hydrocephalus’ because if you have that, it’s imperative that you reduce the level of CSF that is causing pressure on your brain, which should lead to a reduction in symptoms, as per Dr Diana Driscolls Theory.
Regards
Barbara
(UK)
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella (Oct 2002) Fully Blown Empty Sella (Oct 2004); Whiplash Associated Disorder (WAD); Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Vitamin D deficiency; Ehlers Danlos (EDS) type 111; and now Osteoarthritis! and oh, I forgot Arrhythmias – confirmed as runs of Bigeminy and Trigeminy.

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