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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Self-Diagnosis

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Self-Diagnosis › Reply To: Self-Diagnosis

June 2, 2012 at 2:02 am #2308
Maffin
Participant

Pheo or Carcinoid?
…
research
…
hydroxyzine
…
visual chart in RAINBOW colors
…
You may be shocked how a doctor who doesn’t seem to listen may quickly take heed when they SEE the data. Good luck!

Thanks for the tips and links, I’ll look into that! A rainbow chart may actually work =D
As for Hydroxyzine, I can’t tolerate any of the first-generation antihistamines. They make me incredibly drowsy and even more dysfunctional than usual, which is really saying something. Although I’d consider trying it combined with Modafinil for academic purposes, as the worst that should happen is I’d waste a day.

Finally, someone with EDS who takes modafinil! I read it’s used off-label for CFS so I was thinking of trying to get it from my doctor. what does it do for you? And are the other drugs worth looking into as well?

In short, it keeps me awake. Which keeps me alive and moving forward in life.

For the more detail-friendly among us, I’ll copy-paste my notes below. Looks like it’ll be a few posts in length.

I’ve been on Armodafinil regularly for a few months now. It took a while to get used to it. There is some discrepancy concerning sources and possible counterfeiting, which is to be expected when buying drugs “on the street”.

I have taken both legitimate Canadian Modafinil (Alertec, 100mg) obtained via prescription, and Indian Ar/Modafinil (Sun Pharma Modalert 100mg, Waklert150) obtained via other means. Modalert results were inconclusive as they produced no change. In comparison to Alertec brand, Waklert feels “dirty”, contaminated, or otherwise sub-par. It reliably produces more side-effects and less positive effects, limiting its potential for recreational use. It should be noted that Waklert150 is Armodafinil, not Modafinil.

…

Waklert (Effective dose 150mg, Taken in morning, Continued for 4 Months+)
+Sustained wakefulness, ~12 hours with little difficulty
+Slightly increased mental stamina
+Reduced overall sleep time needed.
~Ability to sleep 2 hours after dose: Requires calmer surroundings than usual.
-Slight headache, pain type. (rather than pressure)
-Sensation of fever, but low measured body temperature.
-Dry mouth, sore throat
-Loss of appetite.
-Nausia, slight.
Dosing prior to sleep: 75mg, 150mg
-No perceived effect on sleep.

Faded side-effects after 3 months:
~Changes in taste. Not for better or worse, but a different taste altogether.
-Dizziness
-Nausia, moderate.
-Neck stiffness.
-Inability to focus on tasks – Forgetting what the task was, not racing thoughts.

Faded side-effects after 2 weeks:
-Sensitivity to light, sound.

Faded side-effects after 1 week:
-Intermittent Vertigo

Faded side-effects after 2 days:
–Intermittent double-vision / visual distortion. Text on computer screen sometimes warps / displays in a different location than where it actually is for a second or two. Reminded of Contact (1997 movie) wormhole scene. -> http://www.youtube.com/watch?v=Z8axMaBL4uo @ 2:16, 2:22, 2:30, etc.

Modafinil is a racemic drug. To simplify, 50% of Modafinil is active, and the rest is (in this case) inactive. Armodafinil is enantiopure; it is made of only the active part of Modafinil. Therefore a dose of 150mg Armodafinil ~= 300mg Modafinil. To be more accurate, studies show Armodafinil leads to a 1.8x higher concentration than Modafinil in humans.

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