Hi Susan, I’m so, so sorry for your suffering. This condition is a BEAST, and as you know, I believe most of us are not being evaluated or treated correctly. If you have The Driscoll Theory book, you’ve likely read why I don’t believe MCAD is *the* answer (the FINAL BOTTOM LINE), either — although it’s close, and mast cells are certainly getting involved. I have not done consults in a long time because it was too frustrating to try to get someone’s medical team to think of this condition differently, and try to evaluate and treat us NON-invasively. Alternatively, you may want to check out POTSCare.com. We are announcing this this week. FINALLY, we have a team together who will approach our illness by evaluating ALL symptoms (and signs) at once, and considering all angles to find the underlying problems and to treat based on that (instead of purely symptomatic relief). I hate that many people may not be able to travel for this, but we will release information about successful treatment as we have it, so that everyone around the world can benefit. This appears to be the best way to speed up this treatment paradigm shift and to get the word out. Meanwhile, if you can’t make it to POTSCare, the information in The Driscoll Theory and the free brochure on POTSCare.com may be enough to get you started for now. Big hug…