I promise that, God willing, I will ‘bounce back’ from this. I am sure that I will be able to advocate somehow or help someone else with the knowledge that I end up acquiring. I’m not just trying to whine and complain. I’ve never been a whiner. Thanks to Dr. Diana, I know there is a light. Once some of the research is published, it should make protocol a bit easier and doctors can make better sense of such complex and all pervasive medical issues (in turn I’d feel more secure and at least a little better)..
Remember the saying, “Oh, I need a vacation”. Well, I’ve noticed that many people (not EDS) who have related to me with their dreadful ailments seem to have no problem ‘taking a little break’ if some sort of neat plans arise. I missed Easter festivities this year because I was crapping myself, among other things. Point: it’s so consuming that there IS NEVER a break! Life is like a box of chocolates….. I can manage to sit for about an hour even with pain but crapping or vomiting, not so much. Migraines, can’t walk, gasping for air, not so much. I’m at the mercy of my health – every single day! Again, I digress – ugh!
So sorry. Can you tell that I am both under stress and also not feeling good?! There’s just so little left to ‘wring’ out of myself.
Gentle hugs <--- guess you know you belong if you get this one. Nothing like someone from church giving you a hug and you feel like you are going to scream bloody murder from the pain but are in such shock from the pain that you can't even draw in the air to do so. Again, I would say 'LOL' but not really very funny. Thanks Barbara!