Hi Barbara,
Per other injuries, I’ve been warned repetitively, by multiple educated doctors (when I was in better health, able to work and earn my insurance to cover proper medical care) – DO NOT FAVOR ONE OR THE OTHER SIDE OF MY BODY – DON’T LIMP (NO MATTER WHAT) -I KEEP MY HEAD, NECK, JAW, SHOULDERS STRAIGHT (DON’T HOLD PHONE WITH SHOULDER IS ONE EXAMPLE of a warning I received many years ago). I hadn’t thought of being careful as you’d mentioned (or under circumstances with visitors) BUT am always cautious that way due to past acute injuries/dislocations.
I would say that I was sitting in a position whereas I was able to look straight ahead, almost exclusively. Like a kid sitting strictly in a school chair since there was no back where I was sitting. I kept my body symmetrically ‘straight’ but did have to hold my own head up (and was aware of this). It’s tough when one has an intense desire to be ‘normal’ as I always had been before. I’m beginning to forget but, painfully, I still remember how much I’ve lost at this point.
Your mention of the autonomic dysfunction in completely ‘on target’! My body has been doing tons and tons of outrageously illogical and terrible things to me for the past few years. I’d finally awakened, burning and sweating, in the night and when I entered all of the horrid symptoms dysautonomia popped up – describing the nightmare that I’ve been living to a ‘T’! So mentally challenging to be ‘saddled’ with something so illogical that the human brain seems incapable of even grasping it. My brain, at least, isn’t ready to accept this huge ‘load’ nor does anyone else seem to comprehend the all emcompassing level of dysfunction. I can’t even find a doctor who ‘gets it’. But, YES, my body is constantly ‘shutting down’ and subjecting me to horrible, random dysfunctional troubles.
Do you know of any way of ‘fixing’ ANYTHING that will actually give me MORE FUNCTION versus having to succumb to low level functioning??
Thank you so much for your response. I will read and re-read. I need to re-train my brain to understand what is going on with my body because I am constantly ‘at odds’ with myself – which I am certain is using energy!