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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Self-Diagnosis

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Self-Diagnosis › Reply To: Self-Diagnosis

June 2, 2012 at 6:13 am #2313
SweetFeather
Participant

Also… how’s your gut? Years ago I had similar sleepy symptoms… I was sooooo sleepy and exhausted but I was also not digesting foods well. It got so bad I couldn’t digest raw fruits or veggies or even lettuce. Whole grains killed me. I seemed to feel best eating French bread with butter and jam. Except I was still sleepy! Celiac testing was negative. I had occasional bouts of lower abdominal pain but LOTS of bloating. I just kept getting sleepier and sleepier and i wanted to go back to sleep about as soon as I got up. Finally I was desperate after a bad episode of lower left abdominal pain and I went on the SCD diet because of all the positive reviews of “Breaking the Vicious Cycle. ” Within four days it was if a Deep Fog lifted and my sleepiness abated (I still get brain fog but this was THICK almost intoxicated brain fog plus sleepiness… grogginess) My blood pressure was really low in the morning too. Have you taken your BP/pulse when you wake up before you get up? For me… I think I had developed a really leaky gut and i was being poisoned from fermenting non-digesting food. Is there grease floating in the toilet? Other signs of malabsorption/bad digestion? Just a thought. Sorry not a pleasant one.

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