My experience has been that the docs we’ve seen are not really looking for external communicating hydrocephalus. My understanding is that ventricle enlargement would not necessarily occur in external communicating hydro since there is not an obstruction between the ventricles. My sense is that most docs looking at hydro stop once they see no evidence of ventricle enlargement. This is unfortunate since it could be adding to the number of undiagnosed patients with this health problem.
Where did you acquire your understanding from please ? Is it documented anywhere ?
Any ideas how can we change this, so the radiologists start to recognise it ?
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