NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Endocrine issues and EDS › Reply To: Endocrine issues and EDS
Hi again ‘Give My Daughter the Shot!’ and All,
you say . . . ” What human being has a brain that is equipped to deal with all of this crap WHILE THEY ARE LITERALLY LIVING IT!!”
Well, that’s us my friend and there’s many of us. Dr Paul Cheney, a Chronic Fatigue Consultant says he’s surprised we’re still living!!
The human body is an amazing piece of engineering and, given the right conditions, it will persistently aim to correct any failings, darn, it’s trying it’s best but we’re still not right, it obviously needs more of a helping hand. Here’s my alphabet of coping mechanisms:
COPING A – Z
Alternate sedentary tasks with manual tasks, to give the body chance for recovery in between;
Best to recruit ‘energy saving’ coping mechanisms (i.e. delegate!, or work ‘smarter’);
Cut down on stress (emotional, physical, financial – I know, it ain’t easy!) – avoid conflict;
Drink extra fluids between mouthfuls of food to try and alleviate constipation;
Eat small meals and often, to lessen the burden on the stomach, NEVER over-eat;
Forget working with the body bent forwards, or with your head down (in flexion);
Get someone else to do it, if it means working with your hands above your heart;
Help your head to stay as balanced on the body as possible (sit up straight – no slouching!);
Improve collagen (with Vit C), bone renewal (Vit D), energy (Vit B), stomach acid problems & low blood volume (both need salt, preferably iodised);
Just check you’re not short of minerals too (e.g. Magnesium, Zinc, Selenium, Manganese, etc);
Keep your body warm when it’s cold (layers), or cool when it’s hot (fans, flannels, sprays);
Look at ways of doing your tasks sitting down, wherever possible;
Massage is a great way to disperse the lactic acid build up in the muscles;
Never go to the kitchen bin with something important in the other hand !!!;
Only eat foods you know to be fresh, don’t risk a dose of ‘the runs’!;
Prioritise tasks and write ‘To Do’ lists, to avoid overcrowding your own memory;
Quell pain – Yes you do need to take whatever works, to keep pain as low as possible;
Recognise & deal early with physical stressors that make you sweat, i.e. full bladder/bowel;
Sit opposite the person you are speaking to always, never keep your head/neck at an angle;
Take extra care of skin, don’t allow any sores to become weeping or infected;
Unstable Cranio-cervical joints need support – wear a Philadelphia (or similar) collar;
Vibrating massage mat is best used at the first sign of leg discomfort (wiggling legs helps);
Wear full length ‘Support hose’ to aid leg circulation and to try and alleviate any oedema;
X = 10, 10 O’clock – bedtime, DON’T push yourself to stay up, it’s no good for the adrenals;
Your computer screen & your work need to be elevated, so you are looking straight forwards;
Zzzzzz – Sleeping sitting up, may lessen your symptoms;
Regards
Barbara
(UK)
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella (Oct 2002) Fully Blown Empty Sella (Oct 2004); Whiplash Associated Disorder (WAD); Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Vitamin D deficiency; Ehlers Danlos (EDS) type 111; and now Osteoarthritis! and oh, I forgot Arrhythmias – confirmed as runs of Bigeminy and Trigeminy.