Thanks Barbara,
You are spot on. The emergency Dr said said it was presenting like a seizure. The Diamox worked extremely well at stopping it. When she was on Diamox it was like she had come out of a comma. Could it be possible that the last year and a half was like a very long seizure. After taking Diamox did anybody have the same experience of waking up and not remembering much since they got sick? My child has no clear memories of being sick [1 1/2 years] It is like she has that lost period of time.