Another problem I had at one time was hesitency passing urine. I knew I wanted to go but nothing was happening, once I got to the loo. When I did manage to get started, there was no longer a powerful stream, it was more of a moderate trickle.
I believe there’s all sorts goes on because of EDS, things stretch, or lose their capability of retaining their integrity, tubular vessels become flatter, vessels that should be strong enough to resist external pressure don’t.
With regard to the kidney issue and mineral deficiencies, this is not something I’ve looked into but I’ve found so many other aspects of our condition relate to some deficiency or another, that I thought there might just be some connection and wondered if you felt inclined to explore it. After all, it may be something you can easily correct by a nutritional shift.
Unfortunately my time is greatly absorbed trying to get myself right at the moment (and I believe I’m certainly on the right path). Along my journey, I have often publicised on this site my experiences and findings, as have many others, there’s a wealth of information here, so whatever aspect you are wondering about, just pop a word into the search panel above, you may be pleasantly surprised by the variety of people’s experiences and posts on this website.