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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: DYSAUTONOMIA PICS & STRIPE ON THUMB NAIL

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › DYSAUTONOMIA PICS & STRIPE ON THUMB NAIL › Reply To: DYSAUTONOMIA PICS & STRIPE ON THUMB NAIL

September 21, 2012 at 5:15 pm #2945
Barbara
Participant

Hi Abbilou,
Yes I wear my hold-up support stockings 24/7, I would get your daughter into them as soon as you think she’s ready (and strong enough, I have to use a ‘frame’ to put them on!).

I don’t hold much credence with the knee-highs, as there’s a lot of leg going unsupported. I don’t know whether I’d want to risk them overnight, when the knee can get into angled positions and kids are very restless aren’t they, the knee-highs might roll down and gather and cause sores or restrictions. If I were to wear knee-highs 24/7, I’d probably develop sores near the tops. I don’t know though, as I haven’t tried them, it’s just my guess. Anyone else on here got experience of overnight knee-high support hose?

I don’t wear an abdominal binder at the moment, though I have asked my doctor for one recently. I just remember my bowels packing in for 5 days after I had my 3rd child and an abdominal binder brought great relief to the pain I was suffering and I think, had a beneficial effect on getting them going again (though it was 28 years ago!) It was like a large strong piece of very broad, soft-lined elastic, with some kind of fastener.
Regards
Barbara
(UK)

NOTE (added Oct 2013): I have now tried the abdominal binder and, this time, it worsened the bowel motility, so I cannot really endorse that as an effective treatment now!

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