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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: Video is up about the "invisible" suffering endured by hyperadrenergic POTS patients! I hope it helps explain the suffering to those around you.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Video is up about the "invisible" suffering endured by hyperadrenergic POTS patients! I hope it helps explain the suffering to those around you. › Reply To: Video is up about the "invisible" suffering endured by hyperadrenergic POTS patients! I hope it helps explain the suffering to those around you.

June 1, 2013 at 2:40 pm #3706
charlie1
Participant

Thank-you for the video!! So educational!

I have a question though about the zantac that you mentioned on this video and others before it. I read in Wiki that using zantac can increase your chances of developing food allergy b/c the food proteins don’t get digested and enter the bloodstream… or something like that. That would not be good for people like us are taking zantac for allergy reasons!! Can someone explain.??

I was diagnosed with POTS thru TT testing in Jan. 2013 but am unsure if its the hyperadrenergic type bc catecholamine levels were not taken. Since being on mestinon and florinef I’m much better and the ‘acute stage’ I experienced last spring/summer is thankfully over. A few months after being on meds for POTS, sadly, my symptoms started to appear again, periodically at first, then daily. It was then that I started researching MCAS more in depth and am happy to note that since starting the zantac and antihistamine protocol mentioned by Dr. Diana, I have less dysautonomia symptoms although some mornings after 1 hour of being up and around, if I’ve ate or not, the symptoms come back for awhile. I will get huge brain fog and my legs feel like lead. I started taking .5mg of ativan when that happens (originally prescribed to help with sleeping disorder)and within 20-30 min. the symptoms go away! I couldn’t understand why but have since read that benzo’s are mast cell stabilizers!! I also started NASALCROM and after 25 yrs of chronic nasal stuffiness, I can breathe normal most of the time!! That is amazing! Also, my optometrist said she wouldn’t be surprised if I have Sjorgrens b/c of the incredible dry eyes I have (my doc says I don’t have it b/c yrs ago I was tested for autoimmune markers when I started getting joint pain). The optomistrist started me on OPTICROM last week and if that doesn’t help the red dry eyes, I have a script for PATADAY. I keep researching MCAS and wouldn’t be surprised if I have it. I also likely have Ehlers-Danlos. So thank-you Dr. Diana for your videos and hand-outs!! It is wonderful to have my symptoms validated 🙂