NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Video is up about the "invisible" suffering endured by hyperadrenergic POTS patients! I hope it helps explain the suffering to those around you. › Reply To: Video is up about the "invisible" suffering endured by hyperadrenergic POTS patients! I hope it helps explain the suffering to those around you.
Oh, yes, I can relate. It’s a really great video Dr. Diana… thanks for making it.
I know “ramping up’ to make these informative videos must be a challenge for you each time. I applaud your continued efforts. Maybe it’s the music that helps keep you able to continue your valuable work. Music definitely helps me along the way.
I have a layman’s theory… First off, my father died due to complications from a non-vegetative, diabetic coma, after many months of suffering. And knowing he was so severely brain damaged gave me a great interest in how the damaged brain works… and to couple that, because I had been told years ago that pain actually “assaults the brain” – being a chronic painer, I worry about the future of my own pain reeking havoc on my already compromised situation.
So,there was a wonderful 1 hr news report that explained the concept of “Music Therapy” as a new therapy for treating ppl with head injuries of every sort, strokes, military personal with severe trauma, car wrecks, etc…, and the study found that ppl who participate in “music therapy” (it’s very specialized on the high end, and fairly new, probably not enough practitioners to go around, but critical care hospitals are using them, because it works!) Back to what the studies revealed… ppl who participate in Music Therapy had much quicker recovery time and much less extensive rehabilitation time. MRI’s taken all along the “music thereapy” journey revealed that these patients’ brains actually “re-mapped” neuro pathways around the damaged areas, and within the areas there were not damaged, and drastically enhanced much of their ability to learn to walk, talk, use muscles and motor skills… everything you might consider from total coma back to a much miraculous recoveries that were once unheard of and thought to be impossible.
Based on that, I’ve concluded that as this illness might be assaulting our brain on it’s worst days, or even the days that we are “Pretend Living” (that phrase hits so close to home, btw! Plus in itself, “Pretend Living” is most likely hard for the brain, especially on difficulty days.) However, with the help of music therapy, which I do as often as possible, being a music junkie, this might be slowing down or countering what some of my brain is dealing with. The TV special (I wish I had a tape of it, it was great,) revealed that just the simple act of listening to and simple tapping your feet or fingers to the music is of benefit. Playing along, singing along, or participating with instruments, even if it’s just drum sticks or a bongo, or strumming a guitar, is even better.. it seems the more involved you are with the beat and the rhythms, the more it benefits a you. Critical/trauma care ppl have to start off very slow of course and it’s still a long road back from where they were prior to their health event.
So to tie this up, it is my (layman’s) theory, that as our brains are being impacted by the illnesses, those who use music as a coping tool, or therapy, might actually be stimulating the brain to build new neuro-routing and re-mapping. Sort of like getting well, as you get sick… if that makes sense. I hope so. I am a challenged writer/composer tonight.
Best to you thank you for sharing your research and videos with us who are desperate for answers to the confusing maze of an illness.