• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Pots or leak?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Pots or leak? › Reply To: Pots or leak?

April 29, 2015 at 5:22 pm #5473
spdsk8trgrl
Participant

So true migracie! I was bedridden for much of the day for almost 2 years, just couldn’t make it through the day without lying down all afternoon. This was a result of the constant pain, but also crushing fatigue. I was being actively treated by my neurologist, trying pretty much every migraine treatment out there with very little effect and quite a few medication reactions. So glad you are getting some impact from Zyrtec/Zantac. I was able to try some different antihistamines with a cooperative doctor that didn’t see any harm, and I found that hydroxyzine is my best med. I take 50 mg 4x day, which would completely sedate most people (they use 100 mg pre surgery as a sedative). When it started taking away some of the numbness and tingling, I simply dosed based on when symptoms returned. Sadly the symptoms have exceeded the ability of the hydroxyzine to control them, but it still helps me be somewhat functional. I also took cyproheptadine (Periactin) daily for awhile, which helped a little, but could be contributing to my high prolactin levels so I’ve stopped for now. Cromolyn sodium was a huge help, also. Feel free to contact me for additional help with mast cell stuff. We also have some very active Facebook groups with many knowledgable members.

Leslie

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020