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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Pots or leak?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Pots or leak? › Reply To: Pots or leak?

April 30, 2015 at 12:07 am #5478
miagracie
Participant

Dr. Driscoll,

If one does not have head measurements from childhood, could a baby picture show or imply the head circumference issue?

Sorry to bother you but, one more question…about the papilledema…

From age 18 onward (I’m 39) they have found borderline to high eye pressure, I can’t remember the numbers exactly. But they were right at the edge and sometimes in the treatment range (but no one thought I needed treatment at that point).

With the “air” test it would be higher, and always well within the treatment range, sometimes high enough they were visibly worried. The last time it was and he told me that he would do one more test with the numbing drops and the measurement. It was right toward the edge of normal that way.

I was unable to tolerate eye dilation on my last exam (I know it’s important and next time plan to go to the place that does it with cameras or something instead of dilation) due to the vertigo nausea the visual distortion (even in dark glasses) gives me. Since it was for glasses they let me slide on it. I did get nauseated and dizzy even from the numbing drops distorting my vision. So I’m unsure if he would have been able to catch papilledema on that exam.

Both of my parents had glaucoma but no known complications (I suspect my Dad had EDS). My mother had the same type of high eye pressure since she was quite young in her 20’s. She did not tolerate the drops because the type they gave her made her feel faint (I suspect some POTS with her).

They watched her carefully and aside from ocular migraines (which she didn’t know she was having and they found during an exam) and age related cataracts-they told her that even with the elevated high eye pressure she had no damage or glaucoma issues, but still had glaucoma. (She should have taken the drops, but she refused. We tried to get her to and failed.)

My question, please-Could my high eye pressure not be regular borderline glaucoma but papilledema?

Is eye dilation necessary to determine papilledema? Or can the place with the camera device do it?

If it helps, to help you know what system I mean, my husband is diabetic and also is being watched for a nevus, and they did the full exam with the camera dilation alternative (and he’s good on both accounts).

Sorry to bug you, just an excited newbie who will try to contain herself!

Thanks!

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