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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Pots or leak?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Pots or leak? › Reply To: Pots or leak?

April 29, 2015 at 5:15 pm #5472
Dr. Diana
Keymaster

Thank you for your kind words, Miagracie. 😉 As far as wet ear canals, I can’t tell you how often I hear patients complain of this! If you really want to see if it is CSF, a capillary tube can be used to collect just a tiny amount (assuming you have a lab that will accommodate you!). I’d also consider you more likely to have a leak from your ears if you also have episodic vertigo. Boy, did I have that for a while!! Gads. I also had “squeaky noises” (don’t laugh) that went away when my pressure went down. If your hearing is OK, may I suggest that you focus on looking into high ICP in general (have you tried to reduce it with Diamox?), rather than battle with doctors and labs on testing your ear fluid (what a dead end that was for me!). It took a while, but when vertigo, “squeaky noises”, and ear-popping sort of pressure went away, I no longer worried about my ears. I can’t tell you if your fluid is CSF, but if all corrects with the reduction of CSF pressure, I suspect you were absolutely correct.

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