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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: Nailing down my diagnoses – finally making progress after 13 long years!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Nailing down my diagnoses – finally making progress after 13 long years! › Reply To: Nailing down my diagnoses – finally making progress after 13 long years!

July 15, 2012 at 11:38 pm #2621
martiz
Participant

Hi Issie,
Yes, I recognize your name from the DINET site. I haven’t been active over there as I am trying to track down other related disorders. So much has come of my appt with Dr. Suleman in April.

I know I have hashimotos but in the past, my RA and Lupus ANA’s were negative. I have a feeling that something has changed.

The trick is getting an immunologist to test me. That seems very hard for me.]

I had done the 23andme for my son and Dana and I were trying to figure out a connection between POTS and methylation. Recently, someone sent me a link to EDS and Methylation. Here it is:

http://www.mthfrheds.com/

It’s very interesting but I am not sure that I agree with all of her conclusions.

Thanks for your help,
Marti