• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions › Reply To: Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions

January 6, 2014 at 12:02 am #4697
opuntia
Participant

I too have some similar symptoms to this. My right hand forms that claw formation you discussed and it gets worse with activity – particularly my index finger and my pinkie curl toward my palm the most. This happens most of the time as of recently. I had this happen about seven months ago but then the symptom eased up for awhile, but now it has returned. It also happens in my left hand, but not to as great of as a degree. I have what looks like an essential tremor in my hands and have had it for a year, but tests showed it wasn’t. I’ve begun getting episodes where I lose sensation in my feet and sometimes hands which doesn’t get relieved with standing up or moving around. I had a brain MRI last year which didn’t show anything, and I ended up having a spinal tap a month ago which had oligoclonal bands but they were in both my blood and my CSF, so no one has been able to tell me what that means other than some vague guesses. I’ve always wondered about the tremors and my hand being unable to straighten out – it’s been unexplained for awhile and has really made it difficult for me to do some tasks.

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020