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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions › Reply To: Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions

February 16, 2014 at 6:01 pm #4868
Barbara
Participant

Deuce – my serum potassium was within normal limits, as was my calcium. I wonder if, like with Magnesium, the serum measures do not reflect what’s going on at cellular level ?

Opuntia – It’s strange you said it comes on with activity because my Spinal Injuries consultant called it ‘muscle fatigue’ but mine can come on just by holding my phone for less than 5 minutes, I wonder if it is linked to energy issues – I have had extreme energy issues for some years now but the protocols I am using now are working, to some degree. It will be interesting to find whether these spasms cease as my energy improves even more.

Lisaw, do you gals all have energy issues ?
Barbara.

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