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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions › Reply To: Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions

December 14, 2013 at 6:39 pm #4659
Barbara
Participant

Hi Lisa,
I too have hand contractions just affecting the middle to little finger of my right hand at the moment, lasting about 8 minutes from start to finish, usually preceded by stronger pins and needles, then my fingers buzz (this is a fine vibrating from side to side), usually accompanied by fine fasciculations seen in the back of my hand, sometimes in the lower palm, often going up the underside of my lower arm too. The 3 fingers curl up into my palm and I cannot move them. I can still feel them to the touch but, as I said, I cannot use them.

They do not hurt at the time, like a cramp would but afterwards my hand pain is worse in those 3 fingers. During these spasms I can still freely move my index finger and thumb. At the same time as these events, I usually have stronger pins and needles in both hands and often both feet as well but no contraction spasms affecting these other 3 limbs. I have observed that the tissue in between the hand bones seems to contract, so the bones are more prominent and also the veins become more prominent.

I have videoed this and (one day!) will get around to putting it on youtube.
Barbara
(UK)

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