Hi Lisa,
I am not hypermobile in general. My knees and probably ankles were as a child but it has caused me no trouble in adulthood. My skin’s not stretchy but I do have a sort of youthful look considering I’m in my 50’s. I’m sorry that you are suffering (and somewhat worse than me, for certain). Does anyone have a clue what the cause of these spasms is ?
I’m not under a neurologist at the moment, the last one I travelled 75 miles to see said, “I haven’t looked at your notes but why are you in a wheelchair?” and later on added “I think you’re a nutcase” – So, so much for our NHS, which used to be the envy of the world, this man needed sacking!
I don’t have a tremor, though my fine movements are not as smooth as they used to be. I am okay at picking things up but I drop many many things each day, from pens to cups – I have to make sure I am actually looking at the item (to give my brain more input) in order to keep hold of it.
Barbara
(UK)