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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions › Reply To: Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions

December 16, 2013 at 4:53 pm #4665
Barbara
Participant

Hi Lisa,
I am not hypermobile in general. My knees and probably ankles were as a child but it has caused me no trouble in adulthood. My skin’s not stretchy but I do have a sort of youthful look considering I’m in my 50’s. I’m sorry that you are suffering (and somewhat worse than me, for certain). Does anyone have a clue what the cause of these spasms is ?

I’m not under a neurologist at the moment, the last one I travelled 75 miles to see said, “I haven’t looked at your notes but why are you in a wheelchair?” and later on added “I think you’re a nutcase” – So, so much for our NHS, which used to be the envy of the world, this man needed sacking!

I don’t have a tremor, though my fine movements are not as smooth as they used to be. I am okay at picking things up but I drop many many things each day, from pens to cups – I have to make sure I am actually looking at the item (to give my brain more input) in order to keep hold of it.
Barbara
(UK)

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