NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions › Reply To: Group of girls with EDS Hypermobility experiencing severe muscle spasms and contractions
Mmm . . I think your experience of it starting with 1 hour of rising sort of supports the ‘muscle fatigue’ dx. I read somewhere that ‘working through it’ is bad, so I’m going to take a leaf out of your book (i.e. the arm sling) and totally rest when the contraction happens, after all it’s a symptom of our body in crisis, managing the best it can and crying out for help if you like, so ‘help’ it’s gonna get.
I use a powerchair to get around in, inside and out, otherwise I couldn’t get through even the simplest of days. I do have to keep moving my legs and body though, as keeping still brings it’s own bunch of problems. I used a ‘zimmer’ in the past but didn’t get around much, as it was still draining and I just don’t operate well in an upright position!