I want to smack that rheumatologist for treating you so badly! Argh! What a jerk. I haven’t been to an orthopedic doc yet. I am hoping to try to see a rheumatologist soon and see if the one here in town knows anything about EDS or if they are willing to learn at all. I’m still trying to learn about all of the different people I have to see. There’s the geneticist, gastroenterologist, neurologist, cardiologist, rheumatologist, orthopedic docs, eye doctor. . . uh depending on what else is going on maybe an endocrinologist? Are there others? Oh maybe pain specialists and physical therapy? So far I have only seen the gastro. I don’t count the first neuro because that guy was terrible so I would rather pretend he doesn’t even exist. I see another neuro in about a week and a half and he has a lot of experience with autonomic dysfunction and some neuromuscular stuff so I am really hoping to get some more info nailed down. The joint and muscle pain I have been having has been so much worse lately so I probably need to get in to a rheumatologist before I see the geneticist in November. I have a follow up with my primary in October so I can at least address this stuff with her then if nothing else. My lower back hurts all the time and makes everything difficult. Walking, sleeping, even sitting. I put the head of my bed up on risers to help with heartburn but I’m trying to figure out if it might be irritating my back a little. My neck has finally eased up a little bit after days of awful joint pain that felt like my skull and spine were scraping each other. Now I am back to my regular day-to-day headache and neck pain. Everything hurts and seems intent on staying that way. *shakes fist at body* 😉
Thank you for the concern for my mother-in-law. She is in surgery right now to essentially “glue the leak shut” that was causing blood to pool on her brain. Everyone seems confident so hopefully everything will go well and she will be okay. Whenever my husband had left me home alone (either for deployments or when seeing his family on his own because it was easier), I would have a full blown anxiety attack about feeling like I was in over my head and couldn’t take care of things. When my husband had to go for deployments that lasted for months, I actually moved back in with my parents for the duration of the deployments because the stress of being alone was too unbearable. I am fiercely independent so that is not fun to deal with. Now, the whole thing would be even scarier because I have even less capability than I did before. At least now I am on Zoloft and have some in-the-moment anxiety meds to turn to if I am desperate. I can’t imagine how badly an anxiety attack might hit me now that all of this other stuff has kicked up. *shudder* I hope I don’t have to find out.