Jen,
About you little brother. He sounds a lot like me. Pain is a hard thing to live with, and I think a lot of people with EDS think about suicide or carry through with it. I wonder how many cases are persons with EDS that never knew they had it? When I went back through my family history I found two persons that were thought to have killed themselves. Alcoholism was prevalent too. Looking at their pictures they had the EDS look. I hope your brother will get help. Maybe he should move closer to you? Y’all could be your own support system.