Glad the gastro appt went well. So you drove three hours? I would not be able to sit up for that long. What we have to go through for help. It might be worth it though to go back for the endoscopy. That way he is doing it his way, and especially since you like him. It is highly unusual for a doctor to help a patient off the table. They are usually out the room so fast. I have the same shakes and it drives me crazy. It was one of the first thing the geneticist noticed, was my tremor. Yesterday I went for an MRI of my neck, during it you can’t move or swallow. The poor lady scanning me had to repeat several films. I tried so hard, but the jerks are involuntary. My mom got in today to her cardiologist, and seemed to like him. He is quite worried about her heart murmurs. She has an echo in a couple of weeks.
I am glad you found out sooner that you have EDS. Maybe you will be able to slow your symptoms down and help your brothers. Did you every buy the hand splints? I am thinking about getting some . My thumbs keep popping out with random movements, and it really hurts. My PT even saw it happen while I was doing a wall exercise.
Shonda