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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: AH HA!!! Maybe I should quit reading old posts!!!!!!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › AH HA!!! Maybe I should quit reading old posts!!!!!! › Reply To: AH HA!!! Maybe I should quit reading old posts!!!!!!

August 21, 2013 at 10:21 pm #4151
Lab-Scientist-Lady
Participant

YES! I had not only discomfort when moving my eyes, sometimes I felt like I was about to pass out! Really weird, at my worst (or when my intracranial pressure soars for a number of reasons) I hear a funny noise when I move my eyes from side to side (but not up and down). I described it to my neuro as sort of a ‘Chich-chich’ sound (always twice). He gave me ‘that look’! 😉 As a therapeutic optometrist, this is not something we learn in school! But as soon as I lowered my intracranial pressure (Diamox), it STOPPED. Thank Heavens. I had my first high pressure episode in years (due to inflammation from an injury, likely — just my guess). and the same thing started to creep in. Once again, when I got my intra cranial pressure under control, it stopped. I have no doubt this symptom is from high intracranial pressure.

I hear a swishing sound in my head, and my ears will fill up, start to ring, then empty. I have not told any one this though. Plus I get motion sick too. We EDSers have all kind of freaky symptoms. ;-). Yay us.
Shonda

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