Hi Dr. Diana,
Well, my hope bubble has again burst! The opthamologist I saw yesterday was HORRIBLE. After looking over my medical record he came into the exam with his mind made up about me. He told me no doctor is going to be able to help me and proceeded to ask me very inappropriate questions including, “Oh, so you’re married? How’s that going? Do you like your husband?” He told me that I was stressed or anxious and making a big deal about small symptoms. He was also 40 minutes late for the appointment (I was his first patient) and said nothing about being late. He only spent about 10 minutes on my eye exam, during which time he told me that my eyes were dry and that my eyelids were floppy because I rub them too much (I don’t). He told me the pain in the eye is normal and that headaches are nothing to worry about. I’m going to try to see if I can see the urgent care doctor again since he was really on it. This experience also taught me to NEVER go in an appointment alone. I think if my husband was there Mr. Creepy Ponytail doctor would not have said half the things he did! I go to cardiology tomorrow for my orthostatic intolerance. I really want a tilt table test so I can show them what happens when I stand for more than a few minutes.
Eww… Creep alert, and ‘not all that smart OR caring’ alert!!! I’m sure this doctor knew nothing about EDS! Lordy… Are you SURE you can’t make it to Texas? I have a specialist with me who will help with our hydrocephalus, if needed. A TTT is a GREAT objective measure (if performed correctly). “Do you like your husband?” Are you kidding me? *eyeroll* Hang in, my friend.