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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Newbie looking for advice about symptoms and appointments

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Newbie looking for advice about symptoms and appointments › Reply To: Newbie looking for advice about symptoms and appointments

September 16, 2013 at 9:49 pm #4356
Lab-Scientist-Lady
Participant

Hi Jen,
I am down to taking one day at a time. Sometimes hour by hour. I have only a couple good days a month. I will be starting, again, in a week with a therapist. Three of my doctors keep telling me to see a therapist again. I gave up going after five years because I felt even worst. Especially since they are normal working persons and are not living with a debilitating disease. They never understood and made dumb insulting comments. I will be trying a new lady through my church. I have been diagnosed with hydrocephalous and will see an Ophthalmologist at the end of the week. He will prescribe Diamox for me. He is the doctor that dr. Diana’s and her husband referred me too. They have been such a help. Too bad you can make a trip here.
The men in my family that have EDS do better that the women. I think because men have better muscle mass, and their joints are more stable.
I have a lot of floaters too. And I remember them as a kid too. When you grow up with all the weird symptoms they are your normal. I think that is why we go undiagnosed for so long. There was no way I could tell one doctor what all my symptoms were without them committing me. Lol. I focused on my biggest problems so I did not scare them away.
Let me know how you like the 23me test. I am curious about it, and if it is worth the cost.
Glad your MIL is better each day.
Shonda

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