NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Newbie looking for advice about symptoms and appointments › Reply To: Newbie looking for advice about symptoms and appointments
Oof, I hear ya. The comments some people make, even if they are “well-intentioned”, can be . . .not very helpful. I hope you can find someone that you feel respected by and with whom you can feel comfortable and relaxed. I keep meaning to go back to a therapist I was seeing last year. Especially now that I have the frustration of unhelpful doctors in the mix. I hope you can find someone who has some familiarity with chronic illness. It’s odd how Depression, Anxiety, and other illnesses that therapists are familiar with can be chronic, yet they might not be able to wrap their heads around other chronic forms of illness. Go figure.
I do think 23andMe is interesting. Geneticgenie.com can do an analysis of your 23andMe data and can put together a chart that is easy to understand. It does a methylation chart and a detox chart. It lists a certain number of genes and they use a color code of green, yellow, and red to indicate the level of potential issue. It helped me find my MTHFR info. I couldn’t find it on 23andMe but Geneticgenie made it nice and simple. As for info from 23andMe itself, I am still poking around trying to figure out exactly how much information I can get out of it. There is plenty of raw data to work with and they list a number of conditions to check your risk as well as carrier status. That can be helpful if any of those conditions are relevant to you. I have suspected that I have heart issues and it turns out those are the things that I have a highest risk for. My husband has a family history of cancer and has himself had two cancer scares this year alone and 23andMe listed that as his tops concerns as well. In the 23andMe community, I forget the exact title for the post but someone had been doing a study about how certain gene mutations seem to show up more often in women who have miscarriages. It’s been a little while since I looked at it but I believe my husband has the gene involved with that and his mother had multiple miscarriages so that matches up. It’s up to you if and when you want to try 23andMe but I think it can be helpful at some point at the very least.