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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Newbie looking for advice about symptoms and appointments

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Newbie looking for advice about symptoms and appointments › Reply To: Newbie looking for advice about symptoms and appointments

August 23, 2013 at 8:44 pm #4187
JenB
Participant

I’m right there with you. My anxiety had gotten in the way of working in the past but now my body couldn’t handle it either. I have trouble walking to the point that sometimes I just can’t do it at all. I can’t carry or lift things the way I used to. I can’t wash dishes anymore. I even need help taking showers. I can’t even put my own shoes on anymore. Every day seems to add new things to the list of things I cannot do. My problematic past taught me to embrace every little thing I possibly can because sometimes the little things are all you have. We have no control over what happens to us but we can control how we respond to it. I haven’t had many of the things that so many people take for granted and I know there is plenty that I will never have and so I take a “screw it” response. I’ll take what I can get, surround myself with stuff that makes me laugh or smile, try to live as healthy a life as I can muster to preserve what I have, and be there for others in their times of need. I might not be able to do much but I want to be awesome at what I’ve got. Maybe my future holds an endless line of struggles and/or losses but, screw it, I’ll just keep adapting.

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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