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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Newbie looking for advice about symptoms and appointments

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Newbie looking for advice about symptoms and appointments › Reply To: Newbie looking for advice about symptoms and appointments

August 30, 2013 at 2:08 am #4239
Lab-Scientist-Lady
Participant

Thank for the info on the hand splints. Have you seen an orthopedic doctor yet? You may have to go to more than one. Since they tend to specialize in only one to two areas. Sometimes people go to physical medicine doctors because they focus on the whole body, but I did not have the best experience with them. My rheumatologist was only good at ruling out an auto immune disease and knew nothing about EDS. In fact she got nasty with me when I asked about EDS. She ask why did I think she could diagnose EDS? I had to remind her that sometimes proving a disease is excluding other undying conditions. She grudgingly ordered the labs for me. I need them for both my ortho and geneticist. I wonder why they go through years of medical school if they don’t really want to help people.
Shonda

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