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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Did you see the new vid about thrombosis and my MTHFR results? Please let me know your thoughts.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Did you see the new vid about thrombosis and my MTHFR results? Please let me know your thoughts. › Reply To: Did you see the new vid about thrombosis and my MTHFR results? Please let me know your thoughts.

September 9, 2012 at 7:48 pm #2906
Jeshyr
Participant

The website http://geneticgenie.org/ can help you with interpreting the 23&me; results into a format that says which of these genes we’re interested in, and it helpfully colours the results red/yellow/green so we can see which ones are best/middle/worst! I offered my programming skills (such as they are!) to the guy so hopefully the rest of the site will be operational soon too.

I am also quite doubtful about whether this is very relevant to us – there’s definitely a potential but it seems to me like a fairly low probability thing to be trying. There have been so many people in the ME/CFS/Fibro communities focussing on this methylation stuff for years and years and admittedly without the gene testing part but most of them aren’t any better than they were when they started … so I remain fairly skeptical about whether it’s very helpful for many people.

On the other hand I have the most common mythylation defect being C667T homozygous, plus being homozygous for the MAO A and two COMT defects so there is a *potential* thing there for me. But yeah, I’m not actually going to do anything about it as yet … if it really is helping people, that’ll become clear pretty soon I figure.

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