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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Could this be EDS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Could this be EDS? › Reply To: Could this be EDS?

May 13, 2016 at 11:08 am #5949
Dr. Diana
Keymaster

Boy, this is a tough question! If you are not flexible, you likely won’t be considered for a diagnosis of EDS (have you looked into the Beighton Scale or the Brighton Criteria?). I think it’s important to first be checked for potentially dangerous/treatable conditions such as Marfans and Loeys-Dietz syndrome. If you have the all-clear on those, the next step is to consider very rare conditions — something a geneticist could help you with IF you and your doctors feel it is worthwhile. Because most EDS patients cannot be diagnosed genetically, and because treatment is currently for symptoms, unless you need a firm diagnosis for insurance purposes, work, etc, the presumptive diagnosis may not be helpful. That was the case for my family, I’m afraid. Please let us know!:)

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