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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: High ICP or Low ICP with CSF leak? Diamox is mildly helping… ADVICE PLEASE!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › High ICP or Low ICP with CSF leak? Diamox is mildly helping… ADVICE PLEASE! › Reply To: High ICP or Low ICP with CSF leak? Diamox is mildly helping… ADVICE PLEASE!

June 27, 2016 at 9:00 pm #5967
Dr. Diana
Keymaster

Hello, my friend. I hate to hear that you are dealing with this. 🙁 If you have a CTD, I understand your concern about the LP — been there! If you and your doctors can figure this out noninvasively, I’d be all for it! You know to watch your CO2 levels, right? The magic number is 22 or above to keep Diamox working well. You are right that spinal leaks causing low ICP are relieved when lying down. Sometimes symptoms of high ICP mimic those of low ICP. Instead, we can sometimes look for hints in the MRI’s, fundus exams, and — you guessed it — response to treatment. Hang in….

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