Hi Naturegirl, I don’t think your journey is unusual, honestly — it sounds so much like mine! Perhaps you know that left ventricular diastolic dysfunction (LVDD) was one of my areas of research, as I found it also affected many MS patients. My research poster on this is on the research page at POTSCare.com (cut and paste:http://www.potscare.com/research/ ), suggesting a possible etiology (and various potential treatments). When I had LVDD, it was bad enough to need diuretics to keep me from wheezing at night time. Although it is unclear what medication helped with my LVDD, it did go away, although it took a few years. I think that gives us all hope, don’t you? As far as pediatric doses of medications, that used to be, too. I teased my doctors that for my first dose, I would just sniff the medication. Higher doses meant I licked the pill. lol