NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › EDS or marfans? › Reply To: EDS or marfans?
January 13, 2013 at 3:00 pm
#3328
Keymaster
HI Nompancakes, my geneticist used the common worksheet to determine whether it looked like my son and I had Marfans or EDS with Marfanoid Habitus. I think the biggest question is whether your aortic root is enlarged. Do you know? Marfan.org is a great site to check out. If you go to “related conditions” and read about the “MASS phenotype”, you’ll be reading about EDS with the Marfanoid Habitus. I don’t think you’re paranoid at all! It is important to rule out Marfans, and I’m sure your doctor would agree! (well, pretty sure… ha). 🙂