Holy smokes. This sounds like me, too. I’m new here and am trying to figure out WHAT I HAVE!! I am tall and skinny(ish), have no muscles to speak of, have what looks like autonomic dysregulation, and some folks are wondering if I have Lyme Disease. Could I have EDS with the tall/skinny genes? Mast cell medicines are the only thing I’ve found to help me so far (thanks to Dr. D’s videos!). My doctors think it’s “anxiety”. Give me a break. Oh, and I puff up like a blow fish pretty often. My feet are flat and my perky personality is becoming the devil-incarnate. Help?
Hi Bendable2! Welcome to our little corner of Heaven. ha. Just your user name sounds like “us”! Are you hypermobile? Most of us have been told we have “anxiety”. Don’t let that get to you, if you can! I got so upset the first time that happened, that I had a set-back. Not good. We need to try to “chillax” as we work on our health. I’m so glad mast cell meds helped! That gives us some clues right there. Did you see the symptoms checklist on my website under Articles and Handouts? If you can get that back to me, I can take a look — perhaps it will give me an idea of what is going on with you! You are in good company, my friend… 😉