Holy smokes. This sounds like me, too. I’m new here and am trying to figure out WHAT I HAVE!! I am tall and skinny(ish), have no muscles to speak of, have what looks like autonomic dysregulation, and some folks are wondering if I have Lyme Disease. Could I have EDS with the tall/skinny genes? Mast cell medicines are the only thing I’ve found to help me so far (thanks to Dr. D’s videos!). My doctors think it’s “anxiety”. Give me a break. Oh, and I puff up like a blow fish pretty often. My feet are flat and my perky personality is becoming the devil-incarnate. Help?