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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: update Diamox and Sodium Cromoglycate Capsules (Nalcrom)

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › update Diamox and Sodium Cromoglycate Capsules (Nalcrom) › Reply To: update Diamox and Sodium Cromoglycate Capsules (Nalcrom)

January 4, 2013 at 5:15 pm #3296
Dr. Diana
Keymaster

Hi Diamondcut, Ooh, ooh, ooh, I know this! (I feel like I’m in 7th grade again. ha.) Lab Corp calls their CO2 test “Carbon Dioxide, Total”. You want that level to stay above 22, if at all possible. The sicker we are, the harder that is to do, it seems. Nasalcrom is the nasal spray for your nasal passages. You need Cromolyn — either the liquid, or the capsules DISSOLVED IN LIQUID. Your formulating pharmacist can help you with that. I tried just popping the pills. I don’t believe it is as effective as dissolving it first, however. It was so hard for me to get that stuff to dissolve, I found myself licking the sides of the glass to try to get it all! (great visual). I ended up going with Ketotifen (available from Canada). My research indicates it may work a tiny bit better for us, too (research to be released ASAP). If your doctor is comfy prescribing from Canada (I had a doctor/friend in Canada to guide me), Ketotifen is just a tiny pill twice a day. Easy peasy. Remember, it takes a few WEEKS before you start to notice that you are standing without panicking! Enjoy, and let us know how it goes, OK? 🙂

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